Pray for Chloe

Please don’t forget tonight’s Valentine’s Dance to support Chloe!  It’s from 7-9!

Tickets will be on sale at the door of St. Luke, so if you don’t have tickets yet, just pop in tonight to get yours!

We are expecting daughters of all ages…some grandfathers will be escorting their grandaughters.  Please purchase a ticket for someone and ask them to take someone special…a great evening is planned.

Kevin and Chloe will begin the evening with the first dance.

Also remember we have so many wonderful baskets to bid on as well as exciting door prizes.

We hope to see you tonight!

As Nana Becky always says, “FAITH THAT GOES FORWARD TRIUMPHS!”

A special thank you to all of you who have posted to let us know of your love and support…it means so much to hear from you and know that you are praying for Chloe and her family. God bless you each for reaching out to Chloe and her family.

Amy and I read the article in the magazine on Cole who had a rare cancer and died within 8 weeks. He was three years old…they now have a foundation set up to help other families. They were on a fishing trip when Cole began to complain with his stomach…and as his dad said, “we went from a fishing trip to a funeral in just a few weeks.”

God is still God and deserves our praise! We may not understand our lives and why things happen…but it is the praise that will give us strength to go on. We received a sweet note from a family that lives here…their 8 year old daughter said for her birthday she wanted everyone who would be giving her a gift to give that money to Chloe…her mother and daddy sent $150….what a “SWEETHEART”…and I do mean a sweet heart<><

That mom and dad have certainly done something right….something to cause such a small child to think of someone else on their birthday…what a blessing!

Chloe is continuing on the Accutane daily for two weeks and then off two weeks….her little lips are cracked and bleeding even in the corners of her mouth…we continue applying things that help ease the discomfort…though she does not complain at all…her entire body is dry and chapped….of course, this time of year is bad for that anyway. The dosage these children have to take is about three times stronger than what an adult would take….so you can imagine.

Next Tuesday Donnie and Kevin will take her to Atlanta for the first day of her new protocol…we are praying that she has no bad reaction and all goes well. Please pray with us for this new 3F8 that she will be taking.
We are very thankful that this can be done in Atlanta….and praying that this new treatment will give the result we are hoping for….HAMA negative…so she can return to NY for treatment very soon.

Mark the date…for the Valentines Father/Daughter Dance and Benefit…Friday, February 13th-7:00PM-9:00PM, at St. Luke Ministry Center. Tickets are on sale now for $20.00 father/daughter…the proceeds will go to help Chloe and her family with medical and traveling expenses back and forth to NY. If you are local you may purchase tickets at Sanctuary Book Store, Kiddie Shoppe, Pigtails and Crewcuts, Bliss Salon. There is more information regarding this and those to contact on www.prayforchloe. I will also have tickets…call me @706-326-8795 or email me @dwpaul2@yahoo.com. There will be dads and g/dads taking their girls…all ages. Please get the word out and make your plans now to attend. A fun evening for everyone. I must note that Carson Hand will be doing the music for the dance…you do not want to miss this!

“Chloe will live and not die, she will tell of the great works of the Lord.” Psalms 118:17
Love,
Nana Becky

God Is In Control<><

When there is nothing else left to say…one thing for sure He is good! If your day has been a disaster…He is good…If the report you received is not so good…He is still good…If the job you wanted was given to someone else…He is good…If the children have been anything but good…He is good.

I worked today while most everyone else was off…but I am thankful I have a job and that I am able to work. I remember I use to tell the children when they were moaning about going to school…I would tell them that somewhere there was a child that was sick and could not go to school and they wish they were able to get up and go to school. I tried to help them see that complaining was not good…we just need to be so thankful we have the health to get up and go to school or a job…I am not so sure that it worked on them, but I would try.

I know going to church I was saying to Donnie how I wish it would clear up…no raining and lots of sunshine. He said, thank You Lord for the rain…we are going to need it soon. I had my own sermon preached back at me…I could only say you are so right…thank You Lord for the rain…you know what we need when we need it and even some to store for later. It just seems to be one of those days. However, the children have had a good day off from school. Donnie picked up Carly and Chloe early when he was on the way home…then Kevin brought Seth out.

They have had a good time…now Chloe is spending the night. She is back on the two weeks of Accutane…she seems to be a little irritable from it and red and chapped. At this point in life we are just so thankful this is the worst symptom that we are dealing with…this can be dealt with. Kevin spoke with NY and they have talked with Dr. Alvarado in Atlanta and everything is set…he could not speak with them in Atlanta because of the holiday. Tomorrow we should know the dates when the next protocol will begin. For now we will just enjoy everyday and look forward to tomorrow.

Please continue those prayers for Chloe, Kevin, Amy and all the Shiver crew…and all those on our list that we continue believing with for their miracle.

Mark the date…for the Valentines Father/Daughter Dance and Benefit…Friday, February 13th-7:00PM-9:00PM, at St. Luke Ministry Center. Tickets are on sale now for $20.00 father/daughter…the proceeds will go to help Chloe and her family with medical and traveling expenses back and forth to NY. If you are local you may purchase tickets at Sanctuary Book Store, Kiddie Shoppe, Pigtails and Crewcuts, Bliss Salon. There is more information regarding this and those to contact on www.prayforchloe. I will also have tickets…call me @706-326-8795 or email me @dwpaul2@yahoo.com. There will be dads and g/dads taking their girls…all ages. Please get the word out and make your plans now to attend. A fun evening for everyone. I must note that Carson Hand will be doing the music for the dance…you do not want to miss this!

“Chloe will live and not die, she will tell of the great works of the Lord.” Psalms 118:17
Love,
Nana Becky

When you do not know what to do…you just keep moving. The plan may not be plain to you…the route may seem hard, but we just keep moving in the direction that He shows us…because He IS leading.

I have had friends that we do not see real often, but we run into occasionally ask about Chloe…how is she? You don’t mean that she is still getting treatments…still going to NY…still going back and forth to Atlanta…STILL..STILL???

Yes, still she is receiving treatments…and might I say we are blessed for her to be able to STILL receive treatments. I think because it has almost been 3 years that those that have not kept up with her progress just does not know how this journey works. Really, I am not sure we do…only that we have Chloe and we are so thankful. In this world you thank God for every day you have…every birthday is such a milestone…

Chloe will soon be 6 years old. That just does not seem possible…six years old…we started this journey when she was 3 years old…the age Ayden is now…he was only 5 months old. We have got to think of something really special for this birthday…the past two have been spent in the hospital. Her 4th was during her 1st transplant…5th was in NY during treatment. So we are thinking{}

Kevin spoke with the doctors in Atlanta and they will be going up Tuesday for the beginning of the new treatment….she will begin at 8:00AM for labs and to be accessed(port accessed)…then once the labs come back good they will begin the 6 hour infusion…so it will be evening before they will leave to come back home. We are not sure exactly how she will react to this 3F8…it is different from what she has been receiving in NY…NY is sending this to Atlanta for her to be able to receive it there since it is over a 16 day span…we are thankful for that.

Chloe’s health insurance has finally maxed out….one million has been met. She is now I think considered uninsurable…I have not asked Kevin so I am not sure what this will mean for her treatments in NY.

Please continue praying for her…God is not surprised by this and will make a way…when there seems to be no way. He started this journey to NY and He will complete it in His timing. So for now we just CONTINUE ON<><

She called me this afternoon before I left work to tell us that she was ready to be picked up, but wait till I eat because mommie is grilling chicken. So I went and met Amy for the switch…she is here for a few days now.

She is waiting on me to finish so we can go to bed…so I will finish by saying…I thank God that we are able to continue on….I am not going to be concerned about this treatment…I think she is the first to receive this type of 3F8, but if she is getting it…He wanted her to have it.

As I have said before He leads and we will follow. Please continue those powerful prayers for Chloe, Kevin, Amy and all the Shiver crew. A special request has been made for Terri Maxwell and Connie Hughtson…remember them as you pray..PLEASE!

Please make plans for the Father/Daughter Dance Benefit for Chloe…February 13th..7:00PM-9:00PM…St. Luke Mininstry Center-tickets are on sale now for $20…Several places have tickets…Bliss Salon, Kiddie Shoppe, Pigtails and Crewcuts, Monkey Joe’s, 3 Wishes, Columbus School of Music, & Sanctuary Book Store.

If you like you may contact me and I will be sure to get you tickets…dwpaul2@yahoo.com…”A magical evening”…please pass the word…fathers bring your daughters…grandfathers bring your g/daughter…uncles bring your neice…we want YOU to come…make plans now!

“Chloe will live and not die, she will tell of the great works of the Lord.” Psalms 118:17

Love,
Nana Becky

As I look around I see my children grown and with children of their own…our grandchildren…I see them growing up becoming young women and men…my oldest, Alexis is now 16yrs old.

Where did the years go…it seems as though it was yesterday when she was the size of Avery. Even Avery soon to be 6months old is growing way too fast. Just as I know you see time…flying…months quickly turning into years. Amy with four children probably has the least time to think about this, but when she is overwhelmed with the things little ones do to trouble their parents…I tell her as my mother told me…they are young now and are on your toes-when they are older they are on your heart. Boy, was that a true statement.

Amy said to that, “that will be easier.” I said to that, “no, my dear it is those things that tug and trouble your heart and you can do nothing about…only pray and trust God. She feels that way because she is right in the midst of her four growing…Seth soon to be 10 years old, Carly 7 years old, Chloe 5 years old, Seth 3 years old…two years apart leaves not much time…add Chloe and her needs you have a busy life.

However, as I remind her these are the easy years…she laughs. I guess you have to experience it to really know. Then I look around and see those we love so that are really aging and watching them become so feeble…when just “yesterday” they were vibrant, working and active…now they are pushing the walker to get around. Where did yesterday go??

This day and time our lives have become so much busier that we really miss seeing so much that is important in life. I am certainly giving my age thinking like this…however, I wish we could slow down and “smell the roses”. Tonight, looking at this precious couple we love so much that is part of our church family…I looked and thought how quick time flew…you were my age(or about)and now you are feeble and it seems this all took place in just months…it could not be years. Yet, it has been…we have been so busy in our lives that we have forgot to see them as they age…it is as though one week they were much younger and today they are so much older. I pray that we all learn to slow down…enjoy those we love and appreciate…take time to talk with them…give them our time…sit with our young ones and just listen to them play and talk…stop to hear what they are saying to us…MAKE time for them…LOVE!LOVE!LOVE!

I thought it was so precious the other day I was talking with Amy and she was coloring with Carly and Chloe…days of sharing that cannot be replaced ever! When I think of the time I am at work and the time four days a week I am home…it is scary. I know we have to so just do it. Well, I am…but I will just make the most of the time I am at home.

My niece, Tracy was saying the other day…I remember the days I stayed at Nana’s(my mother) like Chloe is staying with you. That was yesterday….yesterday was 30years ago. It flew! Let’s all take time for one another…when we are gone people will not remember the time we stayed on the job or the position we held, but how we LOVED them.

“I will instruct you and teach you in the way which you should go; I will counsel you with My eye upon you. Do not be as the horse or as the mule which have no understanding. Whose trappings include bit and bridle to hold them in check. Otherwise they will not come near to you. Many are the sorrows of the wicked; But he who trusts in the Lord, lovingkindness shall surround him. Be glad in the Lord and rejoice you righteous ones, and shout for joy all you who are upright in heart.” Psalms 32:8-11

Our family extends love and appreciation to each of you for your love and decication to Chloe and our family…there are not enough words to say THANK YOU!!!

Mark the date…for the Valentines Father/Daughter Dance and Benefit…Friday, February 13th-7:00PM-9:00PM, at St. Luke Ministry Center. Tickets are on sale now for $20.00 father/daughter…the proceeds will go to help Chloe and her family with medical and traveling expenses back and forth to NY. If you are local you may purchase tickets at Sanctuary Book Store, Kiddie Shoppe, Pigtails and Crewcuts, Bliss Salon. There is more information regarding this and those to contact on www.prayforchloe.

I will also have tickets…call me @706-326-8795 or email me @dwpaul2@yahoo.com. There will be dads and g/dads taking their girls…all ages. Please get the word out and make your plans now to attend. A fun evening for everyone. I must note that Carson Hand will be doing the music for the dance…you do not want to miss this!

I just saw a clip of a 13 year old that lives in Nebraska on a ranch…himself a cowboy. He had called into a christian radio station and such a message from a young person. You may have seen it…his name is Logan. He went on to say that his dad was roping a calf, born from a cow that was not in the best health…the calf broke her back…Logan had put the calf down and you could hear in his voice how upset he was…he said I wanted to tell you guys something….when I had to put her down I asked God WHY….she was special to me…God said, My Son was special to me too. Logan said when we lose someone we love God understands…he said, His son died for a purpose and He will always understand..just run to Him.

Oh, the truth in that…and this young child has already found it out. God does understand…it does not matter what we are going through…if it is important to us..it is important to Him. If He has not answered our prayer…it is not because He has not heard it, but it will be in His time not ours. We MUST run to Him….keep running to Him…allow Him to speak to us as He did to Logan. He will console our troubled hearts…give peace to those fighting a battle….strength to the weary…comfort to those who are mourning<><

Today, I receive His peace and strength. Thank you to Don for sending me that clip…it blessed me today…and something I needed to hear. Amy and I took Chloe to the ENT today for a recheck since her tubes were placed…all good. They did another hearing test…that has not changed…other than she is able to hear better without the fluid behind both ears. She is very close to the appointment where she will receive her “hearbetters”(hearing aids).

We are so excited about that. She spent the night last night and was staying tonight till she found out that Carly had spend the night company, Abigail…and she wanted to go home to play with them. They will have a good time playing together. Thank You Lord that they are enjoying doing things like this. Up to this past fall we had to be so careful because of Chloe taking chemo and her counts being so low…so this just seems strange, but good! One of the purposes of the new protocol is to lower her immune system to hopefully change her HAMA to negative. I am so thankful for good doctors that have so much knowledge…of course, I know WHO gave them their wisdom and understanding too.